Show your support for Childhood Rare Disease Awareness and cheer our
special VIP children affected by rare diseases at our 4th Annual 5K
and 1M run supporting The Little Miss Hannah Foundation (LMHF). The
organization's mission is to help enhance the quality of life for
young children diagnosed with rare, life-limiting, or undiagnosed
complex medical needs, as well as children who have been placed in
hospice or palliative care. The foundation also gives parents the
necessary tools and financial assistance to empower them to meet their
child’s unique medical and lifestyle needs, as well as provide
support resources and special attention for their other children. We
also work to provide support groups for all members of the family by
providing fun, family-focused and sibling-focused events and
activities. The Vegas Cares About Rare event is scheduled on February
29, 2020, the "rarest" day of the year, to coincide with World Rare
Disease Day, raising awareness to the millions of people affected by a
rare disease. Did you know: There are over 7,000 rare diseases in the
world Rare disease affects 1 in 10 Americans More than 50% of rare
diseases affect children 30% of children diagnosed with rare and
genetic disorders don't live to see their 3rd birthday 55% of families
will incur direct medical expenses not covered by insurance. Many
times, families affected by rare disease struggle to obtain expensive
medical and therapy equipment designed to provide safety to these
children and to improve the quality of their lives. The Little Miss
Hannah Foundation provides this equipment at no cost to the families
to enhance the quality of life of their children. Meet some of our
special kids at our event!
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01/03/2020 Last update